Updating on baby Abigail

Abigail is now 9lb 6oz. We've moved her up to 33ml an hour on the pump. She's been eating like crazy. She's getting chubby :) She has 2 teeth on the bottom already. We're going to talk about starting her on solids next month. She is able to hold her head up for about 30 seconds, which doesn't seem like a lot but it is for her. She seems to be a lot weaker on her right side. She loves to kick her feet constantly. Anytime I put her in her bouncey seat, she starts kicking her feet. Her ssi came through, I recieved her back pay and bought a car so I can take her to all her appointments. :) Her thyroid has been acting up so she's had her blood drawn once a week for 3 weeks, it's almost normal now. Everything has started to get better. Sometimes I worry people will stare at her and wonder what is wrong with her, it makes me worry what she will have to deal with the rest of her life. I will update again as soon as I can.

Update

Abigail is doing better, she weighs 8lb 6oz now. She's doing well on the pump at night, we've moved her up to 33ml at night. She is a very happy baby, smiling and cooing a lot. :) I was hoping for her ssi to come through soon but it will be a couple months. I was going to save for a car. She has numerous appointments, at least one a week. She sees her regular pediatrician, a cardiologist, geneticist, opthamologist, neurosurgeon, endocrinologist, and gastroenterologist. So, a lot of doctors. I have to borrow a car to take her to her appointments :( I'm on freecharitycars.org as mom2alex07 if anyone would like to vote for me, it would be appreciated. I have the donate button on my page and I would just like to say that donations are greatly appreciated, but are not required. They will be saved and used towards a car so that I can get my daughter around. Also, if anyone in the Springfield, Missouri area would like to help with a car that they could donate or I could make payments, I would be very greatful. I wanted to thank everyone for prayers and thoughts about Abigail. She is doing amazing. She's been trying really hard to hold her head up.